Down Syndrome Information
People living with the challenges of Down syndrome, you are not alone!
If you have Down syndrome, or if someone you care for was born with it, call people who care and understand. We are here to provide support, education and resource information for individuals, families and professionals.
DS Networking Group Member: Megan
Down Syndrome Coordinator
Hi!
My name is Kim Johnson and I am the Coordinator for the Down Syndrome support group. I work full time as a Speech/Language Pathologist for the Willmar School District. I also have a small private practice that I really enjoy.
I have a lot of passions in my life related to the field of Communication Disorders. One of these passions is supporting parents. My goal is to help you, as parents, build the support network that may be needed to raise your beautiful young children, young teens and support your
young adults or even aging children!
Drop me a line or give me a call.
I'd love to hear from you!
Kim Johnson, Down Syndrome Coordinator
Email: trcp@wciservices.org or kjohnson05@mchsi.com
Phone: cell-- 320-241-4770 home-- 320-693-3969
Or contact The Resource Center Program
320-235-5310
trcp@wciservices.org
What is Down syndrome?
Down syndrome is the most common genetic condition. One in every 733 babies is born with Down syndrome. The most common form of Down syndrome is called Trisomy 21, because it involves an extra copy of the 21st chromosome. (National Down Syndrome Society website – www.ndss.org).
Resource Center Help
The Resource Center Program is here to help provide you information, resources, support, networking, and information about upcoming events and activities (scholarships available to defer the costs), along with a great lending library. The Resource Center Program staff are continually looking for ways to improve the lives of our special people and want to provide the most current and updated information and resources. Let us know your ideas!
Networking/Support Meetings
Check our website's Events Calendar for the date, time and location of our next meeting. Bring your family and join us!
Event Calendar
Recommended websites with further information
www.arckandi.org
888-231-1777
Kandyohi County Arc-- events, workshops, and much more for people with developmental disabilities!
Meeker or Renville Counties-- Contact: arccentral5@aol.com or call 800-775-3196.
www.ndss.org
Covers a lot of general information about Down syndrome with commonly asked questions and answers. National Down Syndrome Society.
www.nads.org
Covers general information about Down syndrome. National Association for Down Syndrome.
www.dsamn.org
Local website for Minnesota with great information, resources, upcoming events and trainings in Minnesota. Down Syndrome Association of Minnesota.
www.kidshealth.org
Information specific about health in regards to Down syndrome, and also just general health information about all children.
www.ds-health.com
Lot of information in relation to health topics specific to people with Down syndrome, great articles and resources, health care guidelines birth through adulthood, and growth charts for children with Down syndrome.
www.loveandlearning.com
Great resources for children with Down syndrome, learning tools to help them read, recognize letters and numbers, and some computerized programming also available.
www.ableplay.com
Play products for children with special needs.
www.about-down-syndrome.com
Lot of general information about Down syndrome and easy site to navigate.
www.woodbinehouse.com
Great book and resource website with books specific to Down syndrome and varying other disabilities.
www.mrsperkins.com/dolch.htm
Lists the most common words that children should learn to read; mastering this list, the person will be able to read 50 – 75% of all reading material.
www.hwtears.com
Great resource when teaching children how to write. Handwriting Without Tears.
www.superkids.com/aweb/tools/math
Great website for learning math skills and creating your own worksheets for your child’s level and ability.
www.edhelper.com
Great website for all learning issues and can make it very specific to grade level the person is currently functioning at that time.
www.ds-health.com/train.htm
Information specific to toilet training a child with Down syndrome; helpful hints and successful tips.
